We Want To Hear From You!

NAFC and Weill Cornell Medicine are conducting a short survey to understand why patients do not seek medical care for issues around bladder and bowel leakages. Read below to learn more about the research project and how you can participate!

The Problem

With more than 35 million Americans affected by either bladder control or bowel control issues, the impact is far reaching. Those that suffer from these condition also struggle with feelings of embarrassment, isolation, metal anxiety and loss of quality of life. From the onset of symptoms to the initiation of treatment takes on average 7 years and only about 1 in 3 ever seek treatment.  

Recently NAFC surveyed over 1,000 individuals challenged with incontinence.  The results were hardly surprising, but indicated a high level of dissatisfaction with both the treatment options available and the interaction with healthcare providers. As a result, NAFC estimates that there may be millions of symptomatic adult Americans that are not in therapy for bladder leakage issues.

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PUrpose Of The Survey

The main purpose of this research project is to understand why there is such a high level of dissatisfaction with treatment options. We wish to understand the level of knowledge that patients have around treatment options and what kinds of information about the available treatment options would increase the likelihood of patients seeking care. 

The team from Weill Cornell Medicine, led by Dr. Jeremy Wiygul, a practicing urologist, is currently developing new methods to deliver treatment for incontinence. Part of the purpose of this survey is therefore to understand what incontinence sufferers would like to see in new treatments, and what those living with incontinence would change about the treatments they have undergone.

The survey consists of 23 questions and will take roughly 10 minutes to complete.

We appreciate your willingness to share your experience with us. Your answers will help us to create better resources, education and tools for you and the people who visit this site, and will provide valuable feedback to Weill Cornell Medicine, improving their ability to provide treatment options to patients.