GET ACTIVE

Encourage others to start talking and gain control of their bladder health!  We've made it simple for you to share National Bladder Health Week news, resources, tips and tools with your friends, family and healthcare providers.  We have a variety of  simple activities you can choose from to promote awareness of bladder health.  They are cut and paste one of the sample newsletter or emails below.

           

123 Street Avenue, City Town, 99999

(123) 555-6789

email@address.com

 

You can set your address, phone number, email and site description in the settings tab.
Link to read me page with more information.

Incontinence Stories From Experts & Real People | NAFC BHealth Blog

Log in daily to learn tips about #incontinence, #bladder leakage, overcoming symptoms, and first hand accounts from experts and patients.

 

Patient Perspective: Brad's Story

Sarah Jenkins

 Brad's Story

My friends and I are close. Growing up in a small town, we’ve always been there for each other – to joke with, lean on in hard times, and to razz each other. We have a tight-knit group of 5 and they’ve been my chosen family since I was 12. It’s hard to believe so much time has passed since our early days, but here we all are.

I experienced incontinence after having my prostate removed in 2013. It wasn’t a fun thing to go through, and I certainly didn’t enjoy it, but the one thing that made it easier was that I knew to expect it – and that I wasn’t the only one.

You see, one of my buddies in our group, Joe, had also gone through something similar a few years back. He pulled me aside before surgery and told me that the worst thing that was going to happen was that I’d probably have some leaks – maybe a lot. It had happened to him for at least a year after his surgery and he said it was “hell “.

But he told me that the thing that had made it worse was not knowing it was coming, That was why he was talking to me – he wanted to me to know that I wasn’t alone. And, if it weren’t for his advice and pick-me-up talks, I don’t know how I would have gotten through that first year.

I’ve recovered well and don’t really experience the leaks anymore. But I still talk about it. Because that’s what we should all do with those we are close to. You never know who might benefit from your experience, or who might also go through something similar and just need a friend or to know they are not alone.

Don’t let your own embarrassment get in the way of opening up to your loved ones. I’m sure glad Joe didn’t.
 
Brad T., Auburn, AL

Patient Perspective - Teen Bedwetting

Sarah Jenkins

Patient Perspective - teen bedwetting

I’m sharing this story as an adult, but it is really about my childhood. I suffered from bedwetting when I was young and it lasted until I was almost a teenager.  I was lucky enough to have very supportive parents, but that didn’t stop the shame I felt every time it happened. It never felt like a big deal until I was around 7. Then I started getting invited to sleep overs, which were always very stressful for me. I was constantly scared of wetting the bed at someone else’s house and of my friends learning my secret. I started to turn down invitations simply because of my fear, and the problem began to effect me emotionally. Luckily, my bedwetting slowed down a lot after I was around 9, but I still had an occasional accident through age 12.

I’m not sure what I would have done I hadn’t had such wonderful parents to help me through it. They never made me feel bad about it, and always were as discreet as possible when helping me clean up after an accident. Their support took a lot of the pressure off of me, which I think would have only added to my problem back then. I now have a 3-year old myself, and, knowing that they could possibly experience prolonged bedwetting (after all – it is hereditary) shows me how stressful it can be for a parent. If you are a parent of a young child reading this, please take this one thing away:  Support your child, even if their problem has caused you countless sleepless nights, extra loads of laundry, and profound frustrations. I can tell you first-hand that it likely pales in comparison to the shame they’ve felt themselves. And the support and understanding you can give to them during this time will do wonders for their self-esteem and sense of wellbeing. They will remember it forever – I know I have.

Terry B., Salt Lake City, Utah

Need a solution for nighttime bedwetting? Try NAFC's Bedwetting Kit, available here.

Patient Perspective: Ethan's Story

Sarah Jenkins

 Ethan's Story

I am an adult bed wetter.  Those are hard words to say for a 52 year old man. I first started experiencing nighttime leaks when I was in my teens.  Just once in awhile. I’d laugh it off with my brother.  

But as I grew further into adulthood and it kept happening, I knew it was no longer a laughing matter. I found that the problem worsened when I went away to college and I took great pains to keep it hidden from my roommate.  I dared not buy protection from the stores near my campus for fear of someone seeing me, so I would drive an hour away just to pick up whatever absorbent pads I could find, which usually were not a great fit and didn’t do a lot to protect me.  I put blankets on my bed to absorb the leaks, but they didn’t help mask the odor.  

After college I got my own place, without roommates, so I wouldn’t have to worry so much about them finding out. I finally made the decision to speak to a doctor at age 30 – nearly 14 years after suffering from this problem on and off.  

While I still don’t know the reason I wet the bed, my doctor helped me find resources to manage the condition.  After trying several different absorbent products, I finally found one that fits well and is specific to nighttime use, so I rarely wake up anymore with leaks.  

I’ve also discovered that I’m not the only one out there with this problem – NAFC’s message boards have really helped me connect with others and sharing with them has been such a relief.  After years of embarrassment and isolation, I’m so thankful to have found help and to know that I’m not alone.

Ethan S., San Jose, CA

Patient Perspective: Larry's Story

Sarah Jenkins

pexels-photo-848205.jpeg

I’m 68 years old and I have incontinence. I’ve suffered a lot of setbacks over the years. I lost a finger in the army. I suffer from high blood pressure. And I have an old football injury that flares up regularly. But I have never suffered as much shame and humiliation as I have since I started experiencing incontinence.

It started innocently enough - a leak here and there. My doctor said it was due to prostate problems and gave me some medication to help. It did for a while, but then the leaks flared up again and I was forced to admit that this problem was not going away.

My first trip to the grocery store to purchase incontinence pads was a doozy. Standing there, looking at the wall of options was so intimidating. What do I choose? What size? How do I know it will fit? What if it doesn’t – can I return the bag? I had so many questions and no one to ask – after all, it’s not like men just talk about peeing their pants with each other all the time. Not to mention I kept looking over my shoulder to make sure that no one I knew saw me standing there. It would be so embarrassing to be “caught” in this situation.

When I finally got home, I started trying out the various absorbent products that I had purchased. I had bought 3 different types and gave each one a fair shot for a full day before making the call. Unfortunately none of them worked so I was back to the drawing board.

Fortunately, my wife found a company online that sold different products so I gave it a shot. I don’t know why I didn’t start with this option in the first place. They offered a free consultation so I gave them a call. The rep was so helpful and it was great having a guide to walk me through the different options, and also learn more about me, my condition and my lifestyle to help find something that would work best for me.

These days, I only use online services to order absorbent products. And, I’ve found great products that help me keep my leaks controlled, and my condition under wraps so no one is the wiser.
 

I still don’t love having incontinence, but it’s become such a normal part of life now that it doesn’t have the same hold on me as it once did. I didn’t envision this happening to me, but am happy to know that there are resources out there to help and products available that can make it more manageable. I feel free to live my life without fear of leaks and that is something to be really proud of.

Larry B., Seattle, WA

Patient Perspective: Nick's Story

Sarah Jenkins

 Nick's Story

In August of 2015, I underwent surgery to have my prostate removed.  I had been diagnosed with prostate cancer the year before and my doctor had been closely observing me since then. 

When it seemed that my cancer was growing more quickly than he liked, he suggested surgery.  “Afterall”, he said, “you’re only 63.  You can still have a long life without worrying about this.”

So, after a lot of research, I went for it.  I knew there would be complications afterward, but incontinence was not something that I had anticipated being that big of a deal.  I thought I’d probably have to wear diapers for a couple of weeks and that would be the end of it. 

Boy was I wrong. 

Nine months later and I was still having a difficult time making it to the restroom.  It was so embarrassing as a man to face this problem. I couldn’t do the things I wanted to because I was scared of having an accident or a leak, and I felt ashamed of the bulky diapers that I was forced to constantly wear. 

I finally made an appointment with a surgeon in May to discuss a sling procedure and will be having the procedure done next month.  I’m hopeful that this will be a solution for me so that I can get on with my life and get back to doing the things that are important to me. 

Nick W., Houston, TX

Patient Perspective: Samuel's Story

Sarah Jenkins

 Samuel's Story

How many of you men have incontinence? How many of you would admit if you did?  It’s a hard thing to come to terms with as a man. I know, because I’m one of the lucky ones who has been hit with this condition.

I had been noticing the need to use the bathroom more frequently for a while, but didn’t think much of it until I was on vacation with my wife a few years ago. We were in DC, walking around, being the typical tourists, when I suddenly felt the need to go. I wasn’t totally familiar with the area, and it was crowded, so it took me a while to find a bathroom. Unfortunately, it took me too long. I leaked – just a little bit, but enough to be able to tell. Luckily, I had a sweatshirt with me so I just wrapped it around my waist and told my wife we needed to head back to the hotel.

I was so embarrassed. She didn’t understand what had happened until we got back and saw that I needed to change my pants. And even then, it was hard for either of us to comprehend what had happened – I’m a grown man! I shouldn’t be wetting myself. We both brushed it off as a fluke and went on with the rest of our trip.

But a few weeks later at the gym, it happened again. And then again while doing some yard work at home. I started to feel like my body was betraying me. Why was this happening? I didn’t tell my wife that the problem had persisted until a few months later, when it was clear that I would need to get some help. She was so understanding and helpful. She did some research online to see what may be causing it and the treatment options available, helped me find a urologist to talk to, and even came with me to my appointment.

I’m happy to say that after talking to the doctor and getting treatment, I’m doing much better. Turns out I had an enlarged prostate so I’m on medication for that and it’s greatly reduced the need to run to the bathroom every five minutes, not to mention the leaks.

This has been a very humbling experience, but I’m glad that I opened up to my wife about it and that she was so understanding and helpful. I’m not sure I would have had the strength to get to a doctor about this had it not been for her pushing me along. Now, I’m leak free and am able to travel, workout and do pretty much what I want again without having to worry.

Samuel M., Cheyenne, WY

 

 

Patient Perspective: Molly's Story

Sarah Jenkins

 Molly's Story

OAB has long been a problem for me.  I’ve had gradually increasing symptoms since the birth of my second daughter 20 years ago. 

The sudden urge to go can strike at any time, but I’ve learned ways to manage it – I know my triggers (doing the dishes!) and have learned the hard way that I just need to carry around an extra change of clothes. 

For years, my various doctors dismissed these symptoms as nothing to worry about.  “It happens to many women your age”, or “This type of thing happens as you get older”.  This type of response was always really frustrating to me, but I trusted my doctor and felt that they knew best so never really pressed the issue.

I was prescribed medication once, but never really liked the side effects and at the time didn’t know about any alternatives. 

I finally decided it was time to take matters into my own hands when I nearly missed my daughter getting her diploma at her high school graduation because I was in the bathroom.  I got to work doing my own research on treatment options for OAB – turns out there are a lot!  I spoke frankly with my doctor about my wishes, and got a referral to a urogynecologist, who set me up with a simple procedure that I didn’t even know existed a year ago. 

Now, I rarely experience symptoms and I can’t believe I accepted this condition as normal for so long. 

Ladies – take your health into your own hands!  Demand treatment from your doctor and express your concerns.  You know your body better than anyone else - be your own best advocate! OAB is NOT normal! Do something about it and change your life for the better!

Molly R., Montclair, NJ

 

Patient Perspectives: Julie's Story

Sarah Jenkins

 Julie's Story

I’ve always been close to my Mom, but after my Dad passed away 5 years ago, we became closer than ever. We talked on the phone every day and I checked in with her every weekend. She was still very active, even after Dad passed, and continued to play golf every month, meet her girlfriends for bridge and walk her dog two times a day.  All of this changed when she had a stroke.

Suddenly, my very independent Mom was unable to do most things for herself.  Without a second thought, I took her in and cared for her as much as possible as she began her slow path to recovery. It was a shock to suddenly watch a woman that I always looked to for guidance be suddenly, completely dependent on me.  

I’m not going to lie - it’s been difficult at times.  She has always been a very proud woman and to have to ask for help for things like using the bathroom, or worse, to need help cleaning up after an accident, was mortifying for her and uncomfortable for me.  

After some trial and error, we finally developed a rhythm with each other and learned which products worked best for day and night. Even though it’s hard, I’m so grateful to still have my mom with me, and I can’t thank organizations like NAFC enough for providing education on management options during this difficult time of life. Help is there if you need it - you just need to know where to look.  

Julie F., Tampa, FL

Patient Perspective: Alice's Story

Sarah Jenkins

It’s a funny thing, aging. I’m 68 years old, but I don’t feel any different than I did at 20. It happens so gradually really, but it feels like it comes out of nowhere. One day, you’re sitting there with your whole life ahead of you, and then suddenly, you’re walking along, you glance at your reflection and you see an old woman looking back at you. But you don’t feel any different. At least I didn’t. Until I started having bladder leaks.

My bladder leaks crept up on me just like getting old did. I had a few accidents here and there after kids, but didn’t start really noticing them regularly until I was in my late 50’s. I told myself I was too young to have this problem; that they weren’t that big of a deal and that I could manage it on my own.

The truth is, I was embarrassed. I didn’t want anyone to know about my leakage problem. I hid it well, or so I thought, but after a while, it started to weigh on me. Always packing a spare change of clothes, always scouting out the nearest bathroom in case of an emergency. It wasn’t until my daughter finally confronted me that I broke down.

I was visiting her at her house when I had an accident and had to change my pants. My daughter noticed and finally decided that enough was enough. She told me how she had watched me for years try to “hide” my problem, and urged me to get help. She also told me how she herself had talked with her doctor after her son was born and she had started experiencing leaks too. “The good news,” she said, “is that I’m doing so much better, and I hardly have any leaks at all anymore. I want that for you too, Mom.”

Talking to my daughter really opened up my eyes. She was right, and I couldn’t believe I had spent so long trying to hide the issue. Worse, I couldn’t believe she had gone through it too. If I had been open about it, maybe I could have offered some comfort to her, but instead she had had to deal with it on her own. I felt ashamed and embarrassed – not because of my bladder leaks, but because of my silence.

So, I decided to finally get help. After so many years of living with the problem, I didn’t realize how much it had taken over my life. And now that I’ve started taking medication for my bladder leaks, I am so much happier and freer.

I am 68, but the 20 year old still lives inside of me. And now, I can proudly say that I feel just as good today as I did back then.

Don’t wait to get help. Take the initiative to talk to your doctor and get the help you need. We can’t all do this alone and life is too short to let a day go by where this condition is controlling you. Suck up your pride, realize that we all need some help once in a while and just do it. I promise you, you’ll be so glad you did.

Alice B., San Jose, CA

Patient Perspective: Ellen's Story

Sarah Jenkins

 Ellen's Story

After the birth of my 2nd child, I began experiencing urinary incontinence.  I started leaking a bit here and there, and it only got worse as I got older. I assumed it was just a part of aging and that there was nothing I could do. And while the episodes were embarrassing, I was able to control and hide them pretty well by wearing protection and always keeping a close eye on the toilet. 
 
However, when my youngest was 15 years old, I had my first real bowel accident, and life as I knew it officially changed.  I began having more and more episodes, and eventually didn’t even want to leave the house because I was so terrified of having an accident.  I stopped seeing friends. I ordered groceries and most things I needed online.  I refused to go on dates with my husband.  There is something that feels just a little bit worse about having a bowel accident vs. having a bladder accident – it’s messier, smellier, much more apparent, and just so humiliating that you never want others to know it is something you are going through.  
 
I lived like this for six years before finally realizing that I wasn’t controlling my ABL, it was controlling me.  I got up the nerve to speak with my doctor and was able to have a surgery that helped alleviate many of my issues. 
 
All of this could not have come soon enough – my first granddaughter was born a year ago and to think that I may have missed out on that moment or all the wonderful ones that have followed makes me cringe. My only regret is that I didn’t do something about it sooner.
 
Ellen T., Atlanta, GA
 

Patient Perspective: Sally's Story

Sarah Jenkins

 Sally's Story

Once both my kids were in elementary school full time, I finally started working out. I became a runner, and devoted most mornings after they were in school to jogging through the neighborhood. I entered races and started doing small 5Ks, until I finally worked my way up to a full marathon last year. Things were going great and I was feeling strong and happy.

So, imagine my surprise, after years of being an avid runner, to suddenly start experiencing bladder leaks. My kids were not little anymore – they were both in high school at this point and I thought that I bypassed this type of problem that usually accompanies childbirth.

I spoke to my doctor, and found out that, to my surprise, this problem often accompanies serious runners too. Turns out that pounding the pavement every day isn’t so great for your pelvic floor. In fact, my doctor told me that up to 30% of female runners experience incontinence while running.

My doctor said there are lots of things that can weaken the pelvic floor over the years; childbirth, age, and surgeries can all take their toll (I unfortunately check all three boxes). Add to that running several miles per week, and I saw how my activity was contributing to the problem. 

I wasn't ready to give up running, and luckily my doctor didn't think I had to. While there are many therapies available (medication, surgery, exercise), he started me on a regimen of kegel exercises. I do them first thing in the morning, and 3 other times throughout the day.  He also recommended that I try some other behavioral tactics: limit my fluid intake right before my run, make sure to empty my bladder before running, and try planning a route that has some bathroom stops along the way. 

These changes have been helping me a lot and while there might come a time that I consider something like surgery, for now, it helps to know that I’m able to take matters into my own hands and manage my bladder leaks without stopping the activities I love. 

I'm glad I opened up about this condition and can continue my passion!

Sally S., Atlanta, GA

Patient Perspective: Alison's Story

Sarah Jenkins

 Alison's story

I'm a survivor. I’ve lived through the joy (and scars) of giving birth to three boys, experienced two job layoffs, suffered through one divorce, and most recently, battled (and beat the shit out of) breast cancer. I didn’t really expect, after all that, to be so impacted by something as trivial as incontinence.

I first started having symptoms during my cancer treatments – my doctor said that it could sometimes be a side effect of chemo – but thought that it would go away once chemo was over. Unfortunately, I was wrong.

A year after completing treatment, I was still experiencing leakage.  At first, I just lived with it, thinking it would go away on it’s own. I packed extra underwear and experimented with various incontinence pads to help me manage.

I finally decided to talk to my doctor when it was clear that my leaky bladder wasn’t getting any better. My doctor had me make some diet adjustments, prescribed a medication to help stop the leaks, and sent me to a physical therapist to help me learn how to strengthen up my pelvic floor. 

I’ve had one year of regular PT sessions and I am happy to say that I rarely have leaks anymore (even after I stopped taking the medication). 

I’ve lived through a lot of setbacks in my life. But after surviving all of the hardships, I certainly wasn’t going to let something like incontinence control me. Life is just too short to live with something that’s so treatable.

Ladies – find the help if you need it.
 

Alison B., San Diego, CA

Patient Perspectives: Marilyn's Story

Sarah Jenkins

 Marilyn's Story

My mom has always had urgency issues. Growing up it seemed that almost anything she ate would result in a bathroom trip within the next 30 minutes.  And not just causal bathroom trips either – urgent, NEED TO GO RIGHT NOW, bathroom trips.  These were a constant source of frustration for our family – no one understanding that it was something she couldn’t help. 

As I’ve grown older, I’ve experienced some of the same symptoms myself. The urgent needs to empty my bowels, occasional abdominal pains, daily bloating. Thinking that it was just something I inherited, and something that couldn’t really be fixed, I lived with those symptoms for years before casually mentioning it to my doctor during a routine check up.

I was surprised when he mentioned irritable bowel syndrome and after hearing the symptoms, was certain that it was what I, and likely my mother, suffered from for all those years.

After some tests, I was proven correct and he started me on a medication that has mostly erased the discomfort I used to feel on a daily basis.

My Mom has been gone for several years, and I hate that we never pushed her to talk to her doctor about this problem. Thinking back on all the pain and frustration she went through (and likely embarrassment and shame) feels like such a waste considering all that can be done to treat IBS.

But, while it may be too late for her to get treatment, I’m glad that I finally did speak up to my doctor and am not following the same path. Life is just too short to live every day with something that can be treated so easily.
 
Marilyn R., Indianapolis, IN

Patient Perspective: Merrell's Story

Sarah Jenkins

 Merrell's Story

I gave birth to my first little bundle of joy a year ago.  My pregnancy was a dream – no morning sickness, no stretch marks - it was a total breeze, apart from the occasional leaks I had leading up to the birth. I had heard leaks were totally normal though, and figured that after baby came, everything would go back to the way it was before, so I didn’t really give them much thought.

After my baby was born, things changed dramatically. Suddenly, I was dealing with breastfeeding problems, sleepless nights, and a fussy baby that needed me 24-7. Not to mention those little leaks that I had before baby came - they were still lingering and I found myself changing my own pants almost as often as I was changing my baby. Every sneeze, laugh, and jump, caused me to leak and it really started to get me down. After all, I was in the middle of learning a new job – the most important job of my life, being a mom – and I couldn’t even get my own body to behave appropriately.

I finally talked to my doctor about it and he recommended physical therapy. I didn’t even know that was an option!  But, turns out that strengthening your core and  your pelvic floor muscles can really help control your bladder. This was great, because I wasn’t prepared to undergo surgery (not recommended if you’re planning on having more kids, like I am), and was really hoping to find a more natural option. So this seemed like a perfect fit for me.

My therapist started by reviewing my anatomy and showing me how all my muscles are connected. She also told me that I had diastasis recti, which is when your stomach muscles separate during pregnancy. This can really weaken your core, which affects your pelvic floor muscles too. She showed me exercises to help bring these muscles back together and strenghten my core. After baby, it’s also important to do your kegels to help get your strength back – my therapist told me that this would help me control those little leaks that I had when I placed stress on my bladder (like when I coughed, sneezed, or laughed).

It’s been 6 months since I started physical therapy and I’m happy to say that I’m leak free! I feel stronger and more in control of my body, and, more importantly, I feel better able to focus on and care for my growing baby.

I’m so happy I sought help. It makes me feel empowered, and better prepared to handle future pregnancies and babies.

New moms – don’t keep quite about this. Talk to your doctor and get help. There’s no need to suffer in silence. 

Merrell N., Austin, TX

Patient Perspective: Terry's Story

Sarah Jenkins

 Terry's Story

I feel a little funny writing this since I’ve never really suffered from what I would consider incontinence. Sure, I’ve had a few leaks before, but on a regular basis, I don’t. I suffer from something different – Overactive Bladder. 

It started off simply enough – I’d be doing something like washing the dishes, or coming home from work and I’d get a very sudden NEED to use the restroom.  Like…..right now. Most of the time I would make it, but a couple of times, I did wet myself a little. 

I laughed it off for years – after all, it’s certainly not life threatening, and just didn’t seem like too big of a deal to worry about.  Who goes to the doctor because they have to use the bathroom a lot? So, I went on with life, slowly adjusting my routine to account for my bladder, without really even realizing it.

It wasn’t until I was 56 when my husband finally asked me when I was going to talk to someone about it.  He’d noticed all of my attempts to account for my inconsistent bladder even if I hadn’t – requesting a closer table to the restroom at dinners, always making sure I emptied my bladder before we went out, booking the isle seat in a plane for easier bathroom access, and most of all, my absence – me always running off during any event to go. 

At first I didn’t understand what he meant – I was fine! But when he started pointing out how drastically I had changed, without even realizing it, I knew it was time to get help.

So, the next week I went to see my doctor. Turns out this is a condition a lot of people deal with. He gave me a list of foods to watch out for, prescribed some pelvic floor exercises, and set me up on a medication that seems to be doing its job. 

I can’t believe the positive effects it has had on my life - without even realizing it, I had adjusted my life to fit around my bladder and now that I don’t need to I can finally see how much I truly suffered for many years. If you deal with this condition – get help. It really will make a difference in your life, even if you can’t quite see that now.
 

Terry M., Fort Lauderdale, Fl

 

Patient Perspective: Audra's Story

Sarah Jenkins

 Audra's Story

It took me 8 years to talk to my doctor about my bladder leaks. Allow me to let that sink in for a moment – EIGHT YEARS!!  

Think about how much happens during a span of eight years. For me, I had 2 children, switched jobs once, and had a cross country move in the middle of it all.

You’d think that with all of those life changes I’d be able to address something as simple as bladder leaks. I had a million and one reasons why I put it off for so long:  “It will heal after I recover from childbirth.” “It’s not so bad that I can’t manage it.” “I can just wear a pad.” “I’ll just bring along an extra set of clothes with me in the car just in case.” “I’m usually near a bathroom so should be able to make it most of the time.”

On and on the excuses went. But as the years went by, I got sick of just “dealing with it.” I finally made an appointment with my doctor and felt silly when I told him how long I had been suffering (needlessly).  He first set me up with a Physical Therapist to work on strengthening my pelvic floor, and also prescribed me a medication to take. The PT helped me a lot and after nearly 6 months of regular therapy, I was able to quit the medication all together. Now I just go for regular check ups, but keep up the exercises at home on my own.

I feel stronger and leak free, but most of all, I feel in control of my own life again. I’ll never let something like the fear of embarrassment prevent me from getting the medical attention I need again. 

Audra S., Missoula, MT

 

Sometimes, A New Perspective Can Make All The Difference

Sarah Jenkins

 Patient Perspectives

Incontinence. It’s not something we like to talk about, but it can happen to all of us. In fact, more than 25 million people live with some type of incontinence every day. And for most of those people, it takes them an average of about 6-7 years just to talk to their doctor about the problem.  That’s 6-7 years living with leaks. 6-7 years hiding accidents from loved ones. 6-7 years trying to find ways to cope with the condition. 6-7 years of letting the condition limit relationships with friends, family and work. And it’s 6-7 years of allowing incontinence to control you.

At NAFC, we hear from a lot of people with questions about their condition; how to manage it, how to stop it, and what products to try. But the one emotion that rings true in everyone is shame and embarrassment.  Women and men are so very ashamed of this condition that it keeps them from getting close to others. It causes them to avoid doing the things they once loved.  It prevents them from getting help for their bladder leaks. It keeps them from living a life without leaks.

If you’ve spent any time on our site, you know that we have tools to help you. That there are management options available and new alternatives coming out practically every day that you can try to overcome this condition. But for all the absorbent pads, devices, medications, exercises, and procedures that are out there, none of them will do a thing if you’re not willing to admit that you have this problem and that you need to do something about it.

Sometimes, the best motivation comes from other sufferers. So over the next two months, we’re rounding up stories from both women and men to help you see inside the lives of others like you. To help you know that you’re not alone. And to show you that once you find the courage to do something about incontinence, your life can be so much fuller. Many of our sufferers wish they had taken action much sooner. They wish they had talked with someone about the condition: their spouse, a friend, or their doctor.  We hope that in reading their stories, you’ll find the courage to speak up about incontinence and to do something about it.  

So please stay with us and hear from these brave women and men who have shared their stories. And who knows – maybe from them you’ll find the strength to be the next voice.

Throughout May, during Women’s Health Month, we’ll be sharing stories of women who have overcome incontinence. In June, we’ll share all of our stories from men. We’re excited you’re here, and can’t wait for you to hear what

How To Stop Waking Up At Night To Pee

Sarah Jenkins

 How To Stop Waking Up To Pee

Do you find yourself waking up more than once to use the bathroom at night? You may have nocturia, a condition that causes you to need to get out of bed to pee 2 or more times in one night. And while a couple extra trips to the bathroom may seem harmless, it can lead to fragmented, disrupted sleep, leaving you tired and cranky the next day. 

Below are 5 things you can try to stop those frequent trips to the bathroom at night.

#1 Keep A Bladder Diary.

It may sound funny to track your bathroom visits, but a bladder diary is a great tool in identifying the culprits that may be causing you to use the bathroom more often at night. A bladder diary will track your fluid intake (type and amount), how often you use the bathroom during the day, how often you get up to use the bathroom at night, and whether or not that accompanies any bladder leakage.  Keep it for 4-7 days to help you spot any trends. This tool is also useful for your doctor so hang onto it and share it with him or her on your next visit.

Download the NAFC Bladder Diary for Nocturia Here!  

#2 Minimize Urine Production at night

This one is pretty obvious, but it’s important. As we age, we tend to not be able to hold as much in our bladder, which can make us have to use the bathroom more often even if we’re drinking the same amount as we always have before. Be careful not to limit your fluids too much, but do watch what you’re eating and drinking in the few hours before bed to ensure you’re not falling asleep with an already too full bladder. 

  • Avoid excessive fluid intake 4-6 hours before bed (this includes both food and drinks)
  • Avoid caffeine after the morning and limit alcohol at night. Both alcohol and caffeine can make urine more acidic which can irritate the lining of the bladder, causing you to need the bathroom more frequently.
  • Empty your bladder before bed.
  • Take any medications that may act as diuretics earlier in the day if possible (check with your doctor on this first).

#3 Redistribute fluid

If your ankles or legs swell up during the day, the fluid that builds up then gets sent back into the bloodstream when you lie down to sleep, which increases your blood pressure. As a result, the kidneys start working overtime to create more urine so your body can flush the excess fluid out of your system, and consequently causing you to wake up to empty your bladder.  If you’re experiencing swollen ankles or legs, try some of these tips to help redistribute fluid throughout the day and minimize accumulation.

  • Elevate the legs periodically to avoid any fluid build up in the ankles and calves.
  • Use Compression Socks. These elastic stockings exert pressure against the leg while decreasing pressure on the veins, allowing fluids to be redistributed and reabsorbed into the bloodstream. (Check out these super cute ones from Vim&Vigr.)

#4 Practice good sleep hygiene.

Setting yourself up for a good nights sleep can help fight off insomnia, which may be part of the reason you’re up in the first place.  While waking up to go to the bathroom may be the culprit of your insomnia, it could also be that not being able to go or stay asleep could be contributing to nocturia. Many people only think they have to go to the bathroom at night but when they get up to go, they produce just a trickle. This may mean that insomnia, and not nocturia, is actually the culprit and can be caused by a host of different reasons. Be sure to practice good Sleep Hygiene to encourage a functional circadian rhythm (which is your body’s natural clock) and ensure you’re not sabotaging your own sleep. Check out the National Sleep Foundation’s article on sleep hygiene, which discuses the tips below in greater detail:

  • Limit daytime naps to 30 minutes
  • Avoid stimulants such as caffeine and nicotine close to bedtime.
  • Set a consistent sleep and wake time.
  • Exercise regularly (but not right before bed)
  • Avoid foods that may be disruptive right before sleep (like spicy or heavy, rich foods)
  • Reserve the bed for sleep and sex
  • Establish a regular relaxing bedtime routine
  • Keep your bedroom quite, comfortable, and dark.

#5 Talk to your doctor

While the above tips may help ease your nocturia a bit, it’s usually a good idea to see a professional to treat your nocturia. Behavioral changes don’t always address the causes of nocturia. Nocturia is most often caused by nocturnal polyuria, a condition where the kidneys produce too much urine.  That’s why treating nocturia at the source is so important.  If you’re only focused on curing, say, overactive bladder, you’re only targeting the bladder, not the kidneys. In reality, both conditions should be treated to effectively manage their respective symptoms.

“Nocturia has always been hard to treat, but it is now recognized as more than just a symptom of another medical issue,“ says Dr. Donna Deng, Urologic Surgeon at The Permanente Medical Group, Kaiser Oakland Department of Urology.

Nocturia does sometimes have underlying causes so it’s important to get a thorough checkup done by your doctor to rule out any other conditions.

Download our guide to Preparing For Your Doctor Visit to help you talk to your doctor about nocturia. 

 

Why You Shouldn't Let Nocturia Go Untreated

Sarah Jenkins

 Why You Shouldn't Let Nocturia Go Untreated

How often do you wake up at night to use the bathroom? Two times a night?  Three times a night? More than that? It may not seem like a huge deal, but waking up two or more times a night to empty your bladder is not normal, and is a condition that can and should be treated. It can be a huge bother to those who have it and is likely affecting your health in ways you may not even realize.

Nocturia, defined as going to the bathroom 2 or more times at night, happens to about 1 in 3 people over the age of 30, and becomes more common as we age.  Patients with severe nocturia may get up 5 or 6 times during the night to go the bathroom.  And while all these trips to the bathroom may feel more annoying than anything, they are having a big effect on your sleep patterns and put you at risk for a number of other issues. 

Sleep plays a big role in our physical and mental functioning.  Less sleep at night and lower sleep efficiency have both been associated with things like an increased risk of poor physical function, of obesity, diabetes, and cardiovascular disease, as well as a reduced physical function and decreased cognitive function. Not only that, but quality of life is greatly affected:  A US study of 1214 women showed that nocturia had a significant impact on quality of life in patients who made at least 2 trips to the bathroom at night.  It makes sense – the less sleep we get, the more tired we are the next day, affecting our abilities to do our daily tasks and be our best selves.  Even work is affected – lower work productivity and increased sick leave have been reported in patients with nocturia. Getting up often in the night also increases the chance of falls among older adults with nocturia.  Studies have shown that patients who make at least 2 or more trips to the bathroom at night have a greater than 2-fold increase in the risk of fractures and fall-related fractures.

And if you’re the one with nocturia, its not just you that is affected.  Your partners are waking up with you. In one study 46% of women were waking up at night due to their partners nighttime bathroom visits.  Another study that looked at men with nocturia and their spouses showed that sleep disturbance was rated as the most inconvenient issue, with 62% of spouses reporting fatigue, and 36% reporting feeling dissatisfied, unhappy, or terrible.  Your nocturia is not only costing you a good night’s sleep – it’s preventing your partner from getting one as well.

If you have nocturia, don’t let it go untreated. There are lots of behavioral options you can try to fix the problem and if those don’t work, your doctor can prescribe a medication. New medications are now available to treat nocturnal polyuria specifically. Nocturnal polyuria is a condition where the kidneys produce too much urine, and is the most common cause of nocturia. 

“What’s exciting is that physicians are learning more about nocturia and now have more treatment options available for their patients,” says Eric Rovner, MD, a Professor in the Department of Urology at the Medical University of South Carolina in Charleston, and the director of the Section of Voiding Dysfunction, Female Urology and Urodynamics in the Department of Urology at MUSC.

If you live with nocturia, talk to your doctor today about things you can try to stop those middle of the night bathroom trips, and get back to a full nights sleep.

Need help finding a doctor in your area? Use our Find A Specialist Tool!

References:  1. Sonia Ancoli-Israel, Donald L. Bilwise, Jens Peter Norgaard. The effect of nocturia on sleep. Sleep Med Review. 2011 April; 15(2): 91-97.  2. Kupelian V, Wei JT, O'Leary MP, Norgaard JP, Rosen RC, McKinlay JB. Nocturia and quality of life: results from the Boston Area Community Health Survey. Eur Urol. 2012;61(1):78-84. 3. Cappuccio FP, Cooper D, D'Elia L, Strazzullo P, Miller MA. Sleep duration predicts cardiovascular outcomes: a systematic review and metoanalysis of prospective studies. Eur Heart J. 2011;32(12):1484-1492. 4. Fiske J, Scarpero HM, Xue X, Nitti VW. Degree of bother caused by nocturia in women. Neurourol Urodyn. 2004;23(2):130–3. 5. Ohayon MM. Nocturnal awakenings and comorbid disorders in the American general population. J Psychiatr Res. 2008 Nov;43(1):48–54. 6. Kobelt G, Borgstrom F, Mattiasson A. Productivity, vitality and utility in a group of healthy professionally active individuals with nocturia. BJU Int. 2003 Feb;91(3):190–5. 7. Nakagawa H, Ikeda Y, Niu K, Kaiho Y, Ohmori-Matsuda K, Nakaya N, et al. Does nocturia increase fall-related fractures and mortality in a community-dwelling elderly population aged 70 years and over? Results of a 3-year prospective cohort study in Japan. Neurourol Urodyn. 2008;27:674–5. 8. Asplund R. Hip fractures, nocturia, and nocturnal polyuria in the elderly. Arch Gerontol Geriatr. 2006 Nov;43(3):319–26. [PubMed] 9. Shvartzman P, Borkan JM, Stoliar L, Peleg A, Nakar S, Nir G, et al. Second-hand prostatism: effects of prostatic symptoms on spouses’ quality of life, daily routines and family relationships. Fam Pract. 2001 Dec;18(6):610–3. 10. Kim SC, Lee SY. Men’s lower urinary tract symptoms are also mental and physical sufferings for their spouses. J Korean Med Sci. 2009 Apr;24(2):320–5.

 

 

Ask The Expert: What's The Difference Between IBS And Crohn's Disease?

Sarah Jenkins

Ask The Expert

Each month, we ask our expert panel to answer one of our reader's questions. To learn more about the NAFC Expert Panel, and how to submit your own question, see below.

Question: What’s the difference between IBS and Crohn’s Disease? Could I have both?

Answer: While both of these conditions seem to have similar symptoms, they are in fact different, and, yes, it is possible for someone to have both at the same time. Here’s a quick breakdown of the two:

Crohn’s Disease is a chronic, inflammatory bowel disease that affects parts of the digestive tract. Symptoms often include diarrhea, a frequent need to move your bowels, stomach pain, and bloating (all symptoms of IBS). However, with Crohn’s disease, patients also may notice things like vomiting, tiredness, weight loss, fever, or even bleeding.  It’s not certain what causes Crohn’s disease, but most experts believe it is an abnormality in the immune system that can trigger the condition. Chron’s disease is also more common in those with a family history of the disease.

IBS (also called “spastic colon”) carries similar symptoms to Crohn’s disease – cue the diarrhea, frequent trips to the bathroom, and stomach pain.  However, treatment for Crohn’s disease and IBS are different so it pays to be examined for both so that you understand what is causing your symptoms and you can treat it appropriately.  Testing for both conditions can be done with a physical exam, blood test, and usually a colonoscopy or other type of endoscopy procedure.

If you experience any symptoms related to IBS or Crohn’s disease, make an appointment with your doctor today to get tested.

Are you an expert in incontinence care? Would you like to join the NAFC expert panel? Have a question you'd like answered? Contact us!