2000

  • Launches the Continence Care Champion Awards program at the suggestion of Benson Smith
  • Initiates a Spanish language program with a grant from the Medtronic Foundation – translates its six most popular consumer fact sheets
  • Presents the Blueprint for Continence Care in an Assisted Living Setting at a media briefing during the annual conference of the American Geriatric Society
  • Develops and markets to weekly newspapers the Personal Health Matters newspaper column featuring national spokesperson, Dr. Lindsey Kerr
  • NAFC shares success with collaborative groups in reversing the initial recommendation by Medicare to stop coverage of biofeedback and electrical stimulation
  • NAFC stages its 18th Annual Meeting – Assessment, Treatment, and Management of Incontinence – jointly sponsored by Emory University School of Medicine and the Society of Urologic Nurses and Associates
  • Nancy Muller is named as the Executive Director of NAFC

2001

  • Updates and expands organization’s website to include an online Resource Guide – Products and Services for Incontinence®, a search engine to find past newsletter articles by topic, and a database of healthcare providers sorted by state.
  • NAFC’s 19th Annual Conference – Addressing Urinary Health in Eldercare Environments – scheduled for October 19-20 in Washington, DC is canceled due to the terrorist attacks on 9/11. The program is converted to a CD Rom to complement the recently published Blueprint for Continence Care in an Assisted Living Setting
  • Awarded a record grant by the Medtronic Foundation for a multi-year outreach to the Hispanic communities
  • Produces nationally a television PSA through the assistance of a local CBS affiliate that is distributed to 380 mid-sized media markets in 36 states
  • Forms a consumer advisory council for face-to-face input on new publications and services
  • Sponsors a nationwide mall-intercept survey of consumers in 20 U. S. cities to research bathroom habits and bladder control problems in men and women ages 30 – 70, resulting in media coverage by Reuters, ABCnews.com, and Yahoo news service, as well as The Wall Street Journal, LA Times, and USA Today
  • Conducts 100+ in-depth consumer surveys by telephone, revealing incontinence as a silent factor that complicates the treatment of other complaints such as stress, weight gain, anxiety, and sleeplessness
  • Serves as a National Collaborative Partner to the University of Rochester School of Nursing as it studies how best to adapt AHCPR Clinical Practice Guidelines to skilled nursing facilities attempting to provide care to incontinent residents

2002

  • Collaborates with the State of Illinois Department of Public Health (Office of Women’s Health) to produce a two-hour educational program on incontinence in women for satellite broadcast nationally through the CDC’s Health Training & Information Network
  • Successfully combats CMS’ proclamation of the government’s intent to slash Medicare reimbursement on out-patient surgery by as much as 70-80% to rescue an ill-conceived funding arrangement for new medical devices
  • Spends a day on Capitol Hill acquainting targeted senators and members of Congress with NAFC’s constituency and its needs
  • Collaborates with UNC-Chapel Hill to host in Charleston an educational symposium for health care professionals on Urinary Incontinence in the Elderly, with a special focus on continuing care retirement communities
  • Publishes the new Your Personal Guide to Bladder Health booklet, as a tool in support of the Blueprint
  • Hosts its first Women’s Educational Forum on Bladder Health & Pelvic Support in Houston, featuring Debbie Reynolds as celebrity spokesperson and spotlighting U. S. Representative Sheila Jackson Lee as keynote speaker, who presents NAFC with a Certificate of Congressional Recognition. In concert with the event, the Advocacy Coalition is born at NAFC’s initiative, comprised of a collaborative network of over 20 professional associations and consumer organizations.
  • With generous support for Hispanic outreach from the Medtronic Foundation, PSAs in Spanish are distributed to 100 Spanish language television and 200 radio stations across America in March through Univision
  • Quality Care newsletter is revamped in format to save on mailing costs by creating a “wrapper”. An editorial calendar for focus by issue is newly created
  • The 12th edition of the Resource Guide is published.
  • Sponsors Harris survey nationwide of women on SUI, for the first time as young as 18 years of age, revealing that 1 in 4 adult women of all ages experience symptoms of stress urinary incontinence at least monthly. Receives national media coverage in SELF, Cosmopolitan, and the Harvard Health Newsletter as a result.

2003

  • NAFC relocates is headquarters to Charleston for proximity to a major medical mecca offered by MUSC, Roper/St. Francis Hospitals, East Cooper Hospital, Trident Hospital, and the VA Hospital, access to undergraduates educated in not-for-profit accounting and communications, and to be home in a destination city for hosting conferences and meetings. The Development Alliance of Charleston stages a multiple county media event to announce the relocation
  • The Resource Guide becomes a biennial publication, with a new DISCOVERIES® publication created for distribution in alternating years
  • The website is expanded with new sections on urge incontinence, stress urinary incontinence, a newsletter search engine with archived feature articles, a media center for news, and The Bladder Forum (a message board functioning as an online support group for web site visitors who register with NAFC)
  • Consumer educational leaflets receive a new, branded template.
  • Enters into a new relationship with Caregivers Marketplace™ , a not for profit service that offers rebates and discounts to consumers on selected non-prescription products through membership enrollment and proof of purchase
  • Streamlines financial record-keeping and redundant data entry, upgrades computer hardware system and operating software, and converts to new applications software to improve contact management capabilities with Raiser’s Edge®
  • Improves efficiency of sorting the Continence Resource Service with the addition of zip code mapping software
  • Routinely attends annual meetings as a member of the International Continence Society, participating in media events presenting its proprietary consumer research, spotlighting NAFC advocacy initiatives, and serving on both the Continence Promotion Committee and the newly formed Ethics Committee of the ICS.
  • Sponsors Harris Interactive nationwide survey of women with OAB, spotlighting the reasons for their problems with medication compliance and the compromised health status of such symptomatic consumers

2004

  • Holds standing-room-only Women’s Forum in Charleston, capturing all presentations in a first-ever global web cast of the event
  • Publishes Managing Continence for People Living with MS, the first in a series of disease-specific booklets, in a collaborative effort with the National MS Society
  • Produces a Pelvic Floor Muscle Exercise Instruction Kit for Women, including a motivational video featuring Board member and nursing professor Dr. Carolyn Sampselle
  • Adds new section to the website on the topic of selecting absorbents
  • Moves from temporary office space into permanent housing in Historic Charleston, an upbeat transition neighborhood known as the “digital corridor”
  • Acquires statistical tracking software to map and measure web site traffic and provide quarterly reports to industry sponsors
  • Publishes the 13th Edition of the Resource Guide
  • Sponsors still another nationwide survey by Harris Interactive of men and women ages 30-70, revealing the value to engendering self-esteem and increasing knowledge of treatment and management options from seeking diagnosis for bladder control problems. A media event at the Plaza Hotel in New York City is staged and the New York Times features incontinence in its Tuesday “Health & Science” section as a result
  • Another appearance in the syndicated newspaper column of Dear Abby, triggering a tenfold increase in web site activity in the immediate days that follow
  • Participates in a national summit on fall prevention, assembled by the Home Safety Council and The National Council on the Aging
  • Participates in commentary to the USP and the CMS concerning the structure for drug formularies under the new Medicare Part D Prescription Drug Benefit

2005

  • Publishes the Pocket Guide for Caregivers of the Elderly, another tool in support of the Blueprint for Continence Care
  • Expands web site to include new sections on bowel health and fecal incontinence, as well as enlarged prostate (BPH)
  • Hosts the third educational forum, in collaboration with Duke University Medical Center on the Duke campus, including a breakout session covering “What Every Woman Should Know About Her Man’s Prostate” and featuring gold medalist Mary Lou Retton to welcome the audience and encourage seeking treatment in a nationwide radio PSA during Bladder Health Week
  • Produces an educational broadcast in collaboration with UNC-Chapel Hill School of Public Health and School of Journalism in conjunction with the State of Alabama Department of Public Health, utilizing once again the CDC’s satellite communications network with professionals in public health
  • Utilizes web site for a survey on medications compliance among consumers, tapping guidance from the The Health Institute at the School of Medicine of Tufts University on questionnaire design
  • Expands Hispanic outreach by conducting nationwide consumer focus interviews, hiring an Hispanic public relations and advertising agency to craft culturally sensitive to women
  • Continues to publish in national and international journals, including: 1) Business Briefing: Women’s Healthcare “Addressing Urinary Incontinence in Women – What Primary Care Providers Need to Know About Their Patients”, 2) The Journal on Active Aging “Inner Strength: Why Exercise is Vital to Pelvic Floor Health,” and 3) Urologic Nursing “What Americans Understand and How They are Affected by Bladder Control Problems.”
  • Advocates vocally for fairness in applying evidence based medicine concepts to drug formulary choices by policy makers and state Medicaid agency administrators
  • Expands web site content to include a new sponsored section encouraging participation in clinical trial research and the launch of
  • ”Ask An Expert” programming throughout the year
  • Develops Standards of Excellence for Board Governance based largely on guidelines from the National Health Council and adopts written quality standards for staff operations and management
  • Expands consumer education materials to include a new leaflet covering the diagnosis and treatment of pelvic organ prolapse, signaling a wider embrace of NAFC’s mission to include fecal and urinary incontinence and related pelvic floor disorders, voiding dysfunction, and nocturnal enuresis
  • Features Board member Dr. Willy Davila on the national Spanish radio show “El Consultorio de la Dra. Aliza” and posts the broadcast on NAFC’s web site 

2006 

  • Responds to Spanish speaking callers following the nation's first PSA in Spanish about bladder control problems, produced by Univision and aired nationally in January 2006.  Produces a televised message targeted to middle-age women ages 40-65 and receives calls from LA, NYC, Miami, Dallas, Chicago, Denver, and approximately 20 additional metropolitan areas of the country, with PSA broadcasting support from Univision.  Supplements the campaign in print and is featured in SaludGuia with a feature story about bladder control problems in women.
  • Organizes NAFC's first Leadership Visioning Retreat attended by members of the Board of Directors, Project Advisory Council, and Industry Council.  Held in Charleston and partially funded by the Medtronic Foundation, discussion leads to an update and broadening of NAFC's mission statement and brainstorming of ten-year goals including centers of excellence designation by NAFC of providers based on their resources and outcomes
  • Produces new educational leaflets covering "Bowel Management & Fecal Incontinence" (sponsored by Thought Technologies), "Enlarged Prostate" (sponsored by Glaxo Smith Kline), and "Treatment & Management of Male SUI" (sponsored by American Medical Systems)
  • Participates as a member in the first fully established Ethics Committee of the International Continence Society (ICS)
  • Features Minneapolis urologist Stephen Siegel in a "live" Bladder Forum broadcast from the web site on NAFC's Bladder Forum where visitors post questions and comments
  • Floats a newsletter readership survey to solicit feedback on the most highly valued educational materials and services for consumers from NAFC.  As a result, the consumer membership is restructured as a Quality Care donor, acknowledging that readers feel they are supporting NAFC with donations when they subscribe to Quality Care.
  • Hosts a "first-ever" national consumer media briefing in New York City at The Plaza Hotel on pelvic organ prolapse in women, accompanied by Board member urogynecologist Cheryl Iglesia of Washington, DC
  • Conducts a "first-ever" survey via the Quality Care newsletter of readers who have experienced prolapse, with funding support jointly from Mentor Urology and Ethicon Women's Health.  In-depth interviews are subsequently conducted by telephone to understand more fully the frustration of women with symptoms in finding accurate information, responsive providers, trained specialist, and lasting treatment.
  • Publishes an extensively researched essay on "Conflicts of Interests" in NAFC's Affiliates Bulletin, prepared by Staff Health Educator Rachel Levkowicz
  • Announces two more Continence Care Champions:  Professor Katherine Moore of the Wound, Ostomy, Continence Nurses Society and Dr. Kathleen Kobashi of the Society of Women in Urology, both with Pfizer sponsorship
  • Signed onto open letters critical of legislative initiatives in Washington, D.C. allowing gainsharing and profiling among doctors in an effort to cut costs in healthcare without necessarily addressing quality of care and outcomes
  • Serving in a workgroup assigned to patient satisfaction measures as part of a national initiative framed to improve the quality of pharmacy services, patterned after a similar project for hospitals and promoted by the National Committee for Quality Assurance (NCQA) and the Academy of Managed Care Pharmcacy (AMCP)
  • With a task force comprised of Board, PAC, and Industry Council members, updates NAFC's Strategic Plan for the period 2007-2009
  • Co-authors with Dr. Richard Levy "Urinary Incontinence:  Economic Burden and New Choices in Pharmaceutical Treatment," published in Advances in Therapy 
  • Publishes the third edition of DISCOVERIES, featuring the latest in new products, devices, and technology for bladder and bowel control problems and mailed with the 4th quarter issue of Quality Care
  • Attends as Secretary of the Steering Committee a meeting of the World Federation of Incontinent People (WFIP) in Bari, Italy, organized with a charter to harmonize and assure access to safe and effective diagnositc and treatment measures across political borders
  • Names three more Continence Care Champions before yearend:  Cheryl LeCroy of SUNA (Urologic Nurses), Anne Weber of AUGS (Urogynecologists), and Matt Toren Rosenberg of AAFP.  The AUGS and SUNA awards are sponsored by Pfizer, while the family physician award is sponsored by the AUGS Foundation.

2007 

  • Publishes "Continence Care for People Living with Spinal Cord Injury" both in booklet form and in PowerPoint summary on NAFC's web site, by author Todd Linsenmeyer, MD, Chief of Urology at the Kessler Institute. Enthusiastically embraced by the spinal Cord Injury Network International, National Spinal Cord Injury Association, the United Spinal Association, and the Miami Project to Cure Paralysis.  Begins nationwide distribution through SCI rehab centers of the Veteran's Administration hospital network, with assistance from Helen Bosshart, under sponsorship by Coloplast.
  • Updates and references journal sources for all prevalence and outcome statistics quoted throughout NAFC's Web site
  • Travels to New Zealand to present at a continence promotion workshop of the International Continence Society meeting
  • Partners with Emory School of Medicine to offer CME to primary care providers in continence care and Emory Healthcare (Crawford Long Hospital) to offer a Women's Educational Forum in November 2007
  • Presents Paul Taylor from APAOG (Physician Assistants in Obstetrics & Gynecology) with Continence Care Champion award and likewise honors Ed McGuire of SUFU (Society of Urodynamics & Female Urology), both recognitions sponsored by Pfizer
  • Joins a coalition to help advance patient safety by advocating required unique medical device identification and database cataloguing by hospitals, an effort with successful outcomes just six months later
  • Enjoys frequent publicity, including mention in Curves magazine, Medical News Today, and SkyRadio aired on Northwestern Airlines and Aloha Airlines 
  • Produces three new leaflets "Bedwetting in Older Children," "Nocturia," and Nocturnal Eneuresis (i.e., Adult Bedwetting), posting content in new sections on the Web site
  • Receives another major two-year grant from the Medtronic Foundation to continue outreach to Spanish language speakers, allowing production of a new television PSA targeted to men, creation of new educational brochures for men and women, and the launch of grassroots communications through faith-based and other community services.

 

  • Celebrates NAFC's 25th Anniversary with a gala dinner in Atlanta, featuring keynote speaker Dr. Kenneth Thorpe (Chairman of the Department of Health Policy & Management at Rollins School of Public Health), honoring Dr. John DeLancey of the University of Michigan, and announcing NAFC's web hosted Hall of Fame spotlighting nearly a decade of Continence Care Champions recognized by NAFC.

 

 2008

  • Publishes Continence Care for People Living with Parkinson’s Disease, featuring lead author Dr. Clare Fowler from London.  Funded by a grant from Novartis.  Enjoys continuing collaborative support and publicity from the National Parkinson’s Foundation.  Represents the third in NAFC’s  genre  of disease-specific, educational booklets for consumers.
  • Produces gender-specific, culturally sensitive booklets in Spanish.  The women’s pamphlet covers prolapse as well as incontinence, while the men’s publication addresses voiding dysfunction associated with enlarged prostate and post-prostatectomy incontinence.  Creates public service announcements targeted to men produced for television and radio, with broadcasting nationally by Univision. 
  • Undertakes a feasibility study of launching a Center of Excellence initiative, patterned after the web-based process developed by the Society of Bariatric Surgeons.  Works with a task force from the Board of Directors and contracts for consultation from the Surgical Review Corporation.
  • Presents on the topic of “Best Practices” at an inaugural Health Disparities in Hispanic Communities Forum held in Los Angeles in March, hosted by Maya Communications.  Muller serves on a panel with speakers from The Wilmer Eye Institute of Johns Hopkins University Hospital and Medicaid Health Plans of America.
  • Inducts Dr. Rodney Appell into NAFC’s Hall of Fame of Continence Care Champions, nominated by the Society for Urodynamics & Female Urology and announced in Miami at SUFU’s annual meeting.
  • Joins the Chronic Illnesses Coalition headed by Dr. Kenneth Thorpe of Emory University’s School of Public Health as National Chairperson.  Begins writing blogs for www.healthcentral.com, an online effort to bring attention to the healthcare needs of millions of people living with chronic diseases and conditions, many of whom are plagued by the symptoms of bladder and bowel control problems.
  • Signs onto advocacy efforts of the Falls Free Coalition to win increased funding from Congress for the CDC.  Successful in securing a 20-fold increase, as requested, in the Safety of Seniors Act signed into law by the President.
  • Joins the Center for Information and Study on Clinical Research Participation (CISCRP) and participates in public education and awareness days in cities around the country to publicize the public health benefits of participation in clinical trials to help bring new technology to market.
  • Restructures NAFC’s Continence Resource Service to be more user friendly as “Find An Expert.”
  • Revamps and updates several consumer pamphlets, including “What Every Man Should Know” and “What Every Woman Should Know” with sponsorship from Pfizer.  Creates a new, consolidated pamphlet on “OAB” with overhauls of web site content, with sponsorship from Medtronic.  Updates pamphlets on surgery for women and intervention for prolapse, through sponsorship by Ethicon.
  • Names Dr. Patty Goode of UAB and physician assistant Breann Garbas as new Continence Care Champions from the American Geriatrics Society and the Association of Physician Assistants in OBGYN, respectively.
  • Conducts proprietary product development research on odor control in managing incontinence.
  • Provides CEU credits on treating and managing incontinence in the elderly  at a West Virginia state-hosted training workshop for state employees in public health.
  • Achieves Health On the Net (HON) Foundation accreditation of our Web site!  HON is the leading organization promoting and guiding the deployment of useful and reliable online medical and health information and its appropriate and efficient use.  It is a non-profit, non-governmental, Swiss-based foundation.
  • Creates and launches a new e-newsletter based on content from Quality Care and issued electronically by Vertical Response for tracking of readership.
  • With a grant from Novartis, initiates Web site optimization following the launch of NAFC’s new Web site.  With a grant from Google, writes Google AdWords to drive traffic to the site, resulting in top 10 key word positioning  “prolapse,” “bedwetting in children,” “medications for overactive bladder,” and “prostata agrandada.”
  • As an executive committee member, creates and begin managing the Web site for the World Federation of Incontinent Patients, www.wfip.org
  • Assists the Worldwide Fistula Fund with publicity celebrating construction of its new hospital in Niger for repair of obstetrical fistulae.
  • Publishes a new edition of The Resource Guide® Directory of Products & Services for Bladder and Bowel Control, with underwriting of printing expenses by Pfizer.
  • Announces Dr. Holly Richter of AUGS as NAFC’s Continence Care Champion.
  • Publishes new edition of Continence Care for People Living with MS, with sponsorship by Coloplast of the booklet and Power Point slides highlighting a summary of its content on the NAFC  Web site.
  • Sends letters to medical directors of insurance carriers throughout the country and to medical societies, advocating improved access to new, non-surgical options for treating and managing SUI and OAB, specifically radiofrequency energy for remodelling urethral tissue and percutaneous tibial nerve stimulation, respectively.
  • Urges the Senate Special Committee on Aging not to impose post-market restrictions on the communications of companies but rather to strengthen the review and oversight role of the FDA to help make devices safer.
  • Helps to publicize CMS’ change in coverage policy providing funding of sterile, single-use catheters by individuals at risk of developing recurrent urinary tract infections.
  • Undertakes a campaign to heighten and promote the value of professional memberships in NAFC, including the launch of a Members Only section of the Web site, a holiday vacation house giveaway, and free one-year memberships to new fellows, graduating residents, and nurses completing certification in continence care.
  • Meets with the FDA’s Office of Women’s Health
  • Names Shanna Atnip of Parkland Hospital in Dallas as a Continence Care Champion, nominated by SUNA nurses. 

2009

  • Mourns the unexpected death of long time Board member Dr. Rodney Appell of Houston.  Names the Continence Care Champion award in his memory.
  • Writes a standing column for WOCN journal Ostomy, Wound Management.
  • Presents Rodney Appell Continence Care Champion Award to Dr. Roger Dmochowski at the annual SUFU conference.
  • Redirects the Centers of Excellence initiative to be patient-centered and creates a research-based packet of printed materials to solicit interest in applying, by invitation, for the designation.
  • Adds “Find a Bathroom” mapping function to the Web site with a live link to Sit or Squat®toilet locator.
  • Undertakes a nationwide survey, funded by Medtronic and fielded by Kelton Research, on OAB in middle-aged women, marking NAFC’s 5th major, epidemiological survey on OAB and/or urinary incontinence nationwide since 2001. 
  • Enjoys national and regional media attention and publicity, including Urology Times, Active Aging, and the Milwaukee Journal Sentinel newspaper.
    
Updated: Jul.15.2009